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Elvina Scott is a mother, writer, and ultramarathon runner. She has two children, one of whom is disabled and has intractable epilepsy. This parenting experience informs her writing and advocacy work. She is writing a memoir about parenting and caregiving a radically neurodiverse child. Through the lens of her own grief at the physical suffering of her daughter from intractable epilepsy and multiple surgeries, she pursues what grief is hers, and what grief is learned from the broad and pervasive tragedy narrative surrounding disability. In her work, she reckons with her own internalized ableism as she examines her resistance to being a full time caregiver. She reveals her family’s descent into life below the Federal Poverty Level using her personal experience to illustrate the failing social safety nets around long term care and disability. In her work, she invites the reader to look at ableism as a product of white, able bodied supremacy and its direct relationship to racism and sexism. She asks, whose life is determined to be of value, and why? She probes the spiritual question of what is lost over generations when we dehumanize and segregate vast populations of neurodiverse people. She is a MacDowell Fellow and a graduate of Smith College.